OK France was really fun. But today I am too tired to do a good post about it with beautiful pictures to make you jealous of my life, etc. We fit the 13-day trip in around my usual chemo schedule so I had chemo the day before we left, and this morning (we arrived home […]
Author: ekhb
Off. To. France.
In the Boston airport with Eric, Will, Jesse, and Jesse’s friend Lydia, waiting for our plane to Paris. Then train to Aix-en-Provence. I have a bit more energy this week, it seems, and chemo yesterday didn’t slow me down. This should be a fun trip. Though I’m sure by the time we get to where […]
A brief and good update
Last Friday’s 3-month CT scans (chest, abdomen, pelvis) showed nothing new or worrisome–stable mets, so Eribulin still working! That was really good news especially since I was wondering about the cough and shortness of breath. Chemo was easy this week. My sister Deb is visiting and being my driver plus major household helper and cooking […]
Five pillows
For the last two weeks, because of my knee pain and a weird new cough triggered by my standard sleeping position, I have had to figure out a new way to sleep (or be woken up every 60-90 minutes…not fun). So suddenly I am a person who needs: a pillow to put under my knee […]
One ongoing challenge of living with cancer
I am getting bored with how much I think about/talk about/update people about what’s going on with my annoyingly imperfectly-functioning body. It just begins to sound really dull and repetitive to me…and must eventually to others as well! I am certainly better at talking about, or just more willing to talk about, the physical goings-on than […]
Resting up
Argh, so frustrating to need to Rest Up explicitly in a day before tackling a task or event I want to bring even a modicum of energy to–it feels like I am an old laptop with a failing battery that has to be charged up in a pre-planned way. It’s also hard to remember that […]
SRS mask pictures for anyone who’s curious!
I found Not Enough anticipatory-guidance style info online for this stereotactic radiosurgery experience from the patient perspective–so here are some photos that may be useful for someone to run across someday.
Back in the saddle
Sitting here just finishing up the first dose of cycle 23 of chemo, with awesomely normal liver enzymes, decent red-blood-cell count & white-blood-cell count, everything else all good. Now we’ll stop by the food coop and go home and I will rest some, because last week’s three afternoons of zapping gave me a lot to […]
Zaps 1 2 3
This afternoon is the first of my brain zaps for very small tumors. The radiation oncologist wants to do them one at a time over three days, so we will be at Albany Med Tuesday through Friday, every afternoon. Argh! It’s like a job…but with mind-altering drugs (Ativan, Keppra).
I want one of these!
An implantable microdevice to perform high-throughput in vivo drug sensitivity testing in tumors