This morning we had our first visit from a palliative care nurse. We got set up with the Visiting Nurse Association for oversight of the lung-draining process, which continues every other day for now. Then we found out that the VNA also has a palliative care program so we signed up for it. Now we have […]
Author: ekhb
I didn’t sign up for this.
I think I have made my peace, or as much peace as I can right now, with the fact that I most likely will die much sooner than everyone else I know. Of course this sucks, but I don’t find in myself a lot of feeling that it’s unfair. I don’t ask, “Why is this happening to […]
Finally made a T-shirt expressing my philosophy!
It pretty much applies to all realms of life. Want one? You can have one too.
Sign up for blog-post alerts by e-mail
The sign-up box at right is now working fine. Use it if you want to get e-mail whenever I add a blog post.
Phase Two: Definitely the “one damn thing after another” zone now
Friday 12/18 after chemo I was feeling pretty good overall–the Zofran was working to keep nausea away and I didn’t feel too bad. But then Saturday I woke up feeling totally knocked down. I couldn’t walk to the bathroom without help. Not only were my major muscles weak, I felt sort of like sludge was […]
Best bald-head covering advice I’ve encountered
Much has been going on in the last week, which I will write about soon, but in the meantime here is a source of info for anyone else has had to give up their hair to chemotherapy. I am expecting this might be me in 2 to 3 weeks. It even taught me a few […]
Start of Phase Two
I am at NY Oncology Hematology getting my first dose of my first cycle of my second chemotherapy regimen: Gemzar (gemcitabine) and carboplatin. I like to sit in an out-of-the-way corner because it’s quieter–no chair neighbors watching TV. It’s the same chemo schedule as before–Day 1 and Day 8 of a 21-day cycle–but very different […]
Improving the blog!
My friend Lisa is helping me to set up e-mail notifications so that when I add a blog entry, anyone who likes can get notified of it by e-mail. It’s not quite working yet but…close! Stand by for future exciting technological announcements.
Vanities: usefulness
(Part three of four musings on vanity’s role in my life.) I have always enjoyed being a person who is useful, who gets things done, who follows through on details, who is handy, who helps others more than needs help herself. I can still be that person in some realms, but not others. I am riding […]
“Chemo holiday”?
I’m currently on a bit of a ‘chemo holiday” to see if that helps with my various pain symptoms and the neuropathy. I got numb fingers two weeks ago, which led to me calling off the Eribulin last week and the oncologist’s suggestion of a “holiday” to give my body some off time and see if […]