Life keeps trickling by with nothing that calls itself out as news-worthy. Aka blog-worthy. The bar is higher now that one-handed hunt-and-peck is my main route of written-word production. Using dictation software is also an option but it is hedged about with caveats and requirements. I don’t always feel comfortable spooling along my thoughts for […]
Author: ekhb
Lemon drop
I feel like I am a lemon drop being sucked on and getting smaller and smaller. I spend lots more time dozing or just eyes-closed resting than I did a few months ago. (But maybe that’s the effect of trying out morphine every 4 hours for pain?) I have less and less energy for physical […]
Cancer Problem-Cause quiz
Just for fun, print and try this quiz! Problem-Cause Quiz
Mobility
I can’t walk well right now because of my numb and untrustworthy left foot and ankle; because I get big dizzy spells when I try to walk after sitting for 45 minutes or more; and because I get out of breath from just the effort of walking. A few days ago I scolded myself silently, […]
My neighbor Bella goes bald!
Wow, my teenage neighbor and fellow QIVC member Bella shaved her head a couple of weeks ago to raise money for cancer research and remember and honor some people in her life who have had cancer. I just had to go watch the mass shearing in the high-school gym, where Bella and dozens of other teens bravely […]
End of today
Today’s chemo was the start of some cycle or other–9th intrathecal methotrexate maybe, and 6th carboplatin & gemcitabine? I am not keeping track right now. In fact for the last week or so I have not only been deeply physically tired but also very ungrounded on day of the week, day of the month, […]
Body by Steroids
Asking and asking and asking for help large and small
When I found I couldn’t peel an orange or a grapefruit anymore (I like my grapefruits eaten in sections like oranges) I started working on how to cut them into sections so they could be tackled with only one working hand. That was not so easy–it was pretty messy and wasted a lot of juice […]
Reality check
Surprisingly I don’t think that often about the high chance that I’m going to probably die pretty soon from this cancer. I try to think about it, but it’s really hard to conceive of, even when given a life expectancy that is measured in months. How to believe in that? Why believe in that? I […]
Frustrations abound
Living my life has become what I’m trying to think of as The Ellen Project, which I used to be able to manage on my own but now often need help with. Here is a whiny gallery of my daily challenges and–usually–frustrations related to my neuropathy-damaged hands.. There are many things I can no longer do […]